Archive | June, 2013

inspiration

4 Jun

Back in November when I decided to start blogging again I did it for myself.  I was being pretty selfish, using my blog to share our story with our family so I didn’t have to call every friend and family member every time something new came up for Britton and I throughout our epidermoid tumor experience.  I didn’t want to have to tell our story over and over again on the phone and I didn’t want Britton to have to do that either.  By that time we had already spent a month going to doctors appointments and crying on the phone to family and friends and we were already exhausted.

So I started to write about it instead of talk (well I still talked but a little less).  My blog was for me and my family and friends.  What I didn’t expect was that my blog would become a resource for others going through the same thing.  I realized sometime in January that my blog was being found in google searches for epidermoid brain tumor.  My site comes up on the first page when you search it (https://steelewall.wordpress.com/2012/11/19/epidermoid-brain-tumor/). 

Last night I received an email from someone that read my blog simply titled “Thanks.”  It was from a reader that found my blog as her husband goes through a similar experience as mine.  She said our story gives her hope.  The email brought tears to my eyes.  Even if my blog only helped that one person through an experience like this, then I know I’ve done a good job.  It was worth it for me to write it for me but now I see I had an even bigger impact.

And so I leave with this today.  This story popped in my newsfeed on Facebook and I am thankful that our doctor had the courage to cut.  I can’t imagine what it must be like for a neurosurgeon to decide to cut into someone’s brain to potentially save a life.  Thanks to all those who have the courage to do this and to save the lives of countless people that are affected by Epidermoid Brain Tumors.

http://neurosurgery.med.nyu.edu/about-us/courage-cut